Events

This is a monthly workshop for caregivers and patients across the Department of Neurology to understand how to access important “concrete” services that you or your loved ones may need throughout their treatment journey. We will discuss important topics such as transportation, disability, enrolling in Medicaid, advance care planning, as well as managing the emotional burden of caregiving.  Facilitated by a licensed social worker who specializes in neurology.This meeting occurs via Zoom on the second Wednesday of each month, from 1-2pm. Registration is not required. 

Children and young adults with medical complexity experience a myriad of risk factors for decreased bone mineral density and fragility-related fractures. Despite this known vulnerability, the true incidence of fragility-related fractures in this population is not well documented. Furthermore, there is no clear medical consensus about how best to mitigate this risk. Family and caregivers of individuals with medical complexity often experience unfair scrutiny, stigma, and reputational risk when fragility-related fractures occur. Our talk will attempt to provide an evidence-based estimate of the incidence of fragility-related fractures. It will first define what is meant by the term “medical complexity.” It will then offer a brief review of bone health and metabolism and review the risk fractures associated with decreased bone mineral density in the medically fragile population. We will also review current evidence-based recommendations for evaluation of decreased bone mineral density and mitigation of fracture risk. Lastly, our talk will propose a new language model that reframes our conversations about fragility-related fractures, shifting away from a punitive model of cause and effect, and toward a recognition that decreased bone mineral density and heightened fracture risk are known complications of chronic medically complex diseases. Speakers Alvin Moyer, MD, Chief Medical Officer, Director of Palliative Care Services, Elizabeth Seton Children’s Center Cemre Robinson, MD,Clinical Research Director of Rare Bone Disease Programs, Sanofi Weinberg Family Cerebral Palsy Center Orthopedics Lunch & Learn Our Cerebral Palsy Lunch & Learn seminar series focuses on the care of cerebral palsy across the lifespan. The series is designed to improve cerebral palsy care by providing participants and faculty a forum for interaction and collaboration. This online series is hosted by WFCPC Clinical Director, orthopedic surgeon Joshua E. Hyman, MD with a guest speaker for each session.     

This is a monthly group for anyone with a primary brain tumor. Patients are invited to share their honest thoughts and feelings related to living life with a brain tumor. Discussion topics have included child or grandchild rearing while on treatment, Medicare enrollment, managing treatment-related side effects such as “chemo brain,” and coping with one’s diagnosis. Registration is required to attend (click here to register). After completing the registration form, a social worker will be in touch with you to complete the registration process. You will then receive a Zoom link for the next upcoming session.

This is a monthly workshop for caregivers and patients across the Department of Neurology to understand how to access important “concrete” services that you or your loved ones may need throughout their treatment journey. We will discuss important topics such as transportation, disability, enrolling in Medicaid, advance care planning, as well as managing the emotional burden of caregiving.  Facilitated by a licensed social worker who specializes in neurology.This meeting occurs via Zoom on the second Wednesday of each month, from 1-2pm. Registration is not required.